Medical Updates, while we are at it...

Since I'm in here, we have lots of medical updates to share.

Lucy: Now that we have confirmed that she is 6-10 months younger than her paperwork states, we need to get a full cardiac work up. Except that Childrens hasn't opened it's schedule for 2008 yet - so each Monday I get to call and wait on hold, hoping to find out if the calendar is open. Finally today I got through and have an appoinment for late January. http://heart.seattlechildrens.org/home/

Ella: Ella has now been officially diagnosed with Thalassemia - an inhertited, genetic blood disorder that causes chronic anemia. In her form, she has inherited from only one parent, which is very, very good. However, she will need to confirm that her S.O. is not also a carrier - the version from two parents is devastating. Worse case, she can adopt - which she tells me already she wants to do. Learn more at: http://www.thalassemia.org/

Gwenn: Gwenn, Gwenn, Gwenn. How much to say here. This week we have her MRI scheduled at Childrens. Next month is the full neuropsych eval and her VEEG at Childrens. The social worker with the pediatricians office is also working on a care meeting with all of the folks involved - pediatrician, neurologist, neuro-psychologist, speech therapist, occupational therapist, regular therapist, etc. Gwenn has also been dismissed from the counseling at the Kindering Center that we were taking advantage of. They believe that she is dealing with attachment disorder, and so we have a re-evaluation with Attachment Center NW next week. She was seen there just about 2 years ago, and they thought nothing was going on. However, the same issues are still here and amplified, and since the counselor has recommended, they are going to evaluate her again.

Some of you have asked to learn more about Sensory Processing Dysfunction, and other related issues... you can learn more at some of these places:
http://www.sensorynation.com/
http://www.sinetwork.org/home.html
http://www.comeunity.com/disability/sensory_integration/
http://www.brighttots.com/sensory_integration.html
http://gigli.tripod.com/therapies/sensitivities.htm
http://www.incrediblehorizons.com/sensory-integration.htm
Eide's Neurodevelopmental Blog
Developmental Trauma Disorder
Attachment Center NW
Families for Effective Autism Treatment
Great list of books about SI

Lara: Still sound like I'm about to hack up a lung. Cannot WAIT for this to be done.